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How One Mother Turned Her Son’s Rare Disease Diagnosis Into an Opportunity to Help Others
Moira Taffarello and her husband have experienced what no parent hopes to: their child being diagnosed with a rare disease. Speaking with Moira, she said, “Ever since my son Dennis’ birth, I felt something was off. He often had ear infections, regularly fell ill and cried more than most young children.
Experts ignored our concerns for a long time, saying that I was just overprotective. But I followed my intuition, and when Dennis was two years and three months old, he was diagnosed with Hunter Syndrome.”
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