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How One Mother Turned Her Son’s Rare Disease Diagnosis Into an Opportunity to Help Others

Moira Taffarello and her husband have experienced what no parent hopes to: their child being diagnosed with a rare disease. Speaking with Moira, she said, “Ever since my son Dennis’ birth, I felt something was off. He often had ear infections, regularly fell ill and cried more than most young children.

Experts ignored our concerns for a long time, saying that I was just overprotective. But I followed my intuition, and when Dennis was two years and three months old, he was diagnosed with Hunter Syndrome.”

How One Mother Turned Her Son’s Rare Disease Diagnosis Into An Opportunity To Help Others

Source: https://www.takeda.com/what-we-do/areas-of-focus/rare-diseases/rare-disease-day/how-one-mother-turned-her-sons-rare-disease-diagnosis-into-an-opportunity-to-help-others/

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